The NHS have agreed to fund us to go for proton treatment!!! This is the best news we could have hoped for! We know that the funding does not cover everything so the fundraising we have done already will be needed. They will be sending us details of exactly what they are funding in the next few days. As soon as we know, we'll let you know. THANK you SO much for all your support so far, we will not be stopping fundraising, we know they don't cover anything like illnesses that occur from the treatment. We WILL be starting a charity with whatever's left when Sam is well again, so we really hope that you will all continue to support us
Now here is the catch, the treatment costs are going to exceed £100,000 .... IF the family cant get it from the NHS, ( which is unlikely.)
The name of our comrade, CCWEA Bob John, Who served on Repulse (Port) Feb 1972, left April 1974 - rate CWEA
Joined Repulse (again) Feb 1978 left Jan 1981) - rate CCWEA.
If you can help and would like to donate, please go to the website link below.
Many thanks in anticipation on behalf of Bob & Family
Link to Steve ( The boys Dad, Bobs son ) via:
Also on Facebook
Sam was diagnosed with an inoperable brain tumour in 2006
He was 9 years old when he was diagnosed with a brain tumour on his mid-brain at the top of his brain stem. While his tumour is low grade, it's position makes even a partial re-section an impossibility without catastrophic consequences.
Among other things, Sam has endured almost 2 years of chemotherapy in the 7 years he's been fighting this illness. Despite many difficulties, the treatment achieved it's objective, to slow the progression of the condition for long enough to allow Sam's maturing brain to finish growing.
He now needs radio therapy & has been recommended for proton treatment. This is not available in the UK & we are hoping to raise enough money to send Sam to Jacksonville, Florida for the treatment he so desperately needs.
Latest estimate on funds raised so far ....
At least £48 007.25 Thanks so much to everyone.